Mitochondrial Medicine 2022 Phoenix

June 9-11, 2022
Patient/Family Program - Meet the Speakers

Reserve your Hotel Room TODAY - Click Here!

Click Here for Program Agenda - which includes dates and times of sessions.

Pre-symposium Webcast - Newly Diagnosed or Need a Mito Basics Refresher?

What is Mitochondrial Disease?

Amy Goldstein, MD, and Sonal Sharma, MD


For those attending the symposium and want to learn the basics, this is a GREAT primer.

Click Here to watch the May 18th Ask the Mito Doc Webcast

2022 at a Glance

  • Family Registration Opens
  • Doc Is In Registration Opens
  • Voice of the Patient Summit
  • Special Reception for All Attendees
  • Clinical Trial Breakouts
  • Clinical Trial Updates
  • Creating and Coping Workshop
  • Grief Session
  • Caregiver Workshop
  • Doc is In
  • Networking Opportunities
  • accelerators Big Pitch
  • Teen/Young Adult Sessions
  • Leber's Hereditary Optic Neuropathy (LHON) Sessions
  • Evening of Energy


  • Coffee and Conversation
  • Disease Specific Sessions
  • Leigh Syndrome Sessions
  • Leber's Hereditary Optic Neuropathy (LHON) Sessions
  • Doc is In
  • Session for the Newly Diagnosed
  • Teen/Young Adult Sessions
  • Ask the Mito Doc Panels
  • Adult Specific Sessions
  • Parent/Caregiver Sessions
  • Diet and Nutrition
  • Mito and Autism Panel

Special Friday and Saturday Sessions

Andrea Gropman, MD

Children's National

Washington, DC


Friday Morning, June 10

Topic:

Demystifying Neurological Aspects of Mitochondrial Disease

Michio Hirano, MD

Columbia University

New York, NY


Saturday Morning, June 11

Topic:

Mitochondrial Disease: What to Expect as an Adult Patient 

Mark Tarnopolsky, MD, PhD

McMaster University, Health Sciences Centre

Ontario, CA


Saturday Morning, June 11

Topic:

Diet, Nutrition and Nutraceuticals for the Mitochondrial Patient

Mitochondrial Patient Care for the Newly Diagnosed Panel

Saturday Morning, June 11

Colleen Clark Muraresku, MS, LCGC

Children's Hospital of Philadelphia

Philadelphia, PA

Sumit Parikh, MD

The Cleveland Clinic

Cleveland, OH

Rebecca Ganetzky, MD

Children's Hospital of Philadelphia

Philadelphia, PA

Patricia Arnold, LCSW

The University of Texas Health Science Center at Houston

Houston, TX

Leigh Syndrome Sessions

Saturday Morning, June 11

Special Thanks to PALS and our UMDF Ambassadors for supporting the Leigh Sessions.

Ask the Mito Doc Panelists for the Parent/Caregiver Community

Saturday Morning, June 11

Eva Morava-Kozicz, MD, PhD

Mayo Clinic

Rochester, MN

Kumarie Latchman, DO

University of Miami Health System

Miami, FL

Jerry Vockley, MD

Children's Hospital of Pittsburgh

Pittsburgh, PA

Austin Larson, MD

Children's Hospital of Colorado

Aurora, CO

Sonal Sharma, MD

Children's Hospital of Philadelphia

Philadelphia, PA

Tamas Kozicz, MD, PhD

Mayo Clinic

Rochester, MN

Irina A. Anselm, MD

Boston Children's Hospital

(may be participating virtually)

Boston, MA

Ask the Mito Doc Panelists for the Adult Patient Community

Saturday Afternoon, June 11

Mary Kay Koenig, MD

UTHealth/McGovern Medical School

Houston, TX

Fernando Scaglia, MD

Baylor College of Medicine

Houston, TX

Richard Frye, MD, PhD

Phoenix Children's Hospital

Phoenix, AZ

Andrea Gropman, MD

Children's National

Washington, DC

Richard Haas, MB, BChir

University of California San Diego

La Jolla, CA


Autism and Mitochondrial Disease

Saturday Afternoon, June 11

Amy Goldstein, MD

Children's Hospital of Philadelphia

Philadelphia, PA

Robert K. Naviaux, MD, PhD

University of California San Diego

LaJolla, CA

Rebecca Grzadzinski, PhD

University of North Carolina

Chapel Hill, NC

Judy Van de Water, PhD

University of California Davis

Davis, CA

Pat Levitt, PhD

Children’s Hospital Los Angeles

Los Angeles, CA

Abigail Dickinson, PhD

University of California Los Angeles

Los Angeles, CA

Additional Information:

Special Thanks to our 2022 Sponsors